GENETICS SUBCOMMITTEE

6th Floor, Conference Room 9

Bethesda, Maryland 20892

AGENDA*

7:30 am

Welcome

Thomas Murray, Ph.D., Subcommittee Chair

7:40 am

Tissue Samples and Sampling

Elisa Eiseman, Ph.D., Critical Technologies Institute, Rand

7:55 am

Discussion

8:25 am

Report on Mini-Hearings: Cleveland, Boston, and Miami

James Wells, Ph.D., Ms. Henrietta Hyatt Knorr, and Mr. Sean Simon

8:40 am

Discussion

9:10 am

Coffee Break

9:25 am

Privacy and the Genetic Analysis of Stored Tissue: Update

Ms. Sheri Alpert

9:35 am

Discussion

9:55 am

The Ongoing Debate About Stored Tissue Samples

and Informed Consent: Update

Robert Weir, Ph.D., University of Iowa

10: 05 am

Discussion

10: 25 am

One-Way Transfer of Tissue Information: Commentary

Marc Sobel, M.D., Ph.D., National Cancer Institute

Frances Pitlick, Ph.D., American Society for Investigative Pathology

10:45 am

Discussion

11:00 am

Statements by the Public

11:30 am

Joint Session of the Subcommittees**

1:30 pm

Discussion of Recommendations/Policies on the Tissue Samples Issue

Subcommittee Members

3:15 pm

Next Steps

Thomas Murray, Ph.D.

3:30 pm

Adjournment